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http://www.swedish.org/ http://www.accuray.com/ http://www.cksociety.org/ http://www.cyberknifesupport.org/ http://www.ckcoalition.org http://www.aoimaging.com/ Patient Resources Acoustic Neuroma Patient Archive - This site contains a wonderful collection of Acoustic Neuroma patient stories from every treatment option as well as many useful links. Adenoid Cystic Carcinoma Organization International - “ACCOI” is an all-volunteer nonprofit organization formed to further research and awareness of this rare cancer. American Brain Tumor Association - An independent, global organization making an impact by funding research and providing the information patients need to make educated decisions about their health care. American Cancer Society - National organization fighting cancer of all types which provides links to information as well as support. Arterio Venus Malformations of the Brain and Spine - Information about AVM and treatment options. AVM / The Toronto Brain Vascular Malformation Study Group- Great source of information , questions and answers for those suffering from AVM's. Includes a descriptive video clip of an AVM. BioMark International - A privately funded Biotech group that focuses on providing access to the latest in targeted research, treatments, and diagnostics in:stem cell therapy, immunotherapy, and cancer diagnostics. Breakthrough Digest- Breakthrough Digest delivers the latest medical information about disease research and new medications entering the marketplace. CenterWatch - Clinical trials listing service. Clinical Trials - information for current clinical trials being conducted nationwide. Corporate Angel Network - Free air transportation for cancer patients traveling to treatment. FDA - U.S. Food and Drug Administration, center for drug evaluation and research. Healthfinder - Nicely designed and easy to read site to provide information on all general health questions and conditions. International Radiosurgery Support Association - Site provides useful information on radiosurgery in general and answers many common questions. John Hopkins Radiosurgery - An excellent web site from one of the top medical centers which provides information about radiosurgery and a variety of neurosurgical conditions. It also provides good risk vs outcome comparisons between surgical and radiosurgery treatments. National Brain Tumor Foundation - An excellent web site with a lot of information. National Cancer Institute - National organizations that offer services to people with cancer and their families. National Library of Medicine - Link provides access to one of the world's largest data bases on all medical conditions. National Institute of Neurological Disorders and Stroke - NINDS is part of the National Institutes of Health. National Organization of Rare Disorders - Data base on rare diseases. National Rehabilitation Information Center - Disability and rehabilitation information center. Needy Meds - This site is designed to provide information about patient assistance programs which provide no cost prescription medications to eligible participants. Neurosurgery on Call - Official web site of the American Association of Neurosurgeons. Pancreatic Cancer Network Group - National patient advocacy organization for the pancreatic cancer community. Patient Inform - Web site that offers free access to medical studies pertaining to cancer, heart disease and diabetes. PubMed - A service of the National Library of Medicine, PubMed includes links to many sites providing full text articles and other related resources. Radiological Society of North America Social Security Disability Process - Link to the social security administration with specific information on the disability claim process Spinal Arteriovenous Malformations- Louisiana State University Medical Center and Ochsner Clinic. Shows case studies for different types of AVM with downloadable AVM graphics. Stanford Cancer Center Stanford Health Library - Consumer health information library that provides scientifically-based medical information to help people make informed decision about their health and health care. Virtual Trials - Clinical trials and treatments for brain tumors maintained by the Musella Foundation. What You Should Know About AVMS - Clinical trials and treatments for brain tumors maintained by the Musella Foundation. Other Support Groups Acoustic Neuroma Association - Provides support and information for patients with an Acoustic Neuroma or other benign problems affecting the cranial nerves. Acoustic Neuroma Association of New Jersey - A volunteer, nonprofit organization for acoustic neuroma patients, their families and friends. Aneurysm & AVM Support - A place for patients with an aneurysm or arterio venous malformation as well as their families and friends to share experiences. Arterio Venus Malformation and Aneurysm Support- Support group for family and friends seeking information and support for AVM and aneurysm. AVM Support UK- A support site in The United Kingdom that offers a place to share AVM experiences and information. Breast Cancer Support- A large community of survivors with many speciality info. boards, including Meeting Place for Survivors, chemo, surgery, radiation, etc. Daily updated cancer news and nightly chats. Self Help for Hard of Hearing People - Support group for those with hearing impairment providing support and options. Self Help Groups - Data base to search over 1000 national and international support groups for all kinds of conditions. Spinal Cord AVM Support Group - Support for patients with AVM's of the spinal cord and their families. |